We acknowledge the Traditional Owners of country throughout Australia and recognise their continuing connection to land, waters and culture. We pay our respects to their Elders past, present and emerging.

© 2019 Global MRKH Day

 

The Global MRKH Day 2019 is the first international event dedicated to Mayer-Rokitansky-Küster-Hauser (MRKH) Syndrome, designed by women with MRKH for women with MRKH. This event will be held on Friday 29 November 2019, The Royal Children’s Hospital, Melbourne, Australia.

Our key objective in planning the Global MRKH Day 2019 was to ask ourselves and our community What are the most important topics surrounding MRKH and what does this community want to hear about?

Responding to this we have created a program which addresses the fundamental aspects of MRKH, inviting speakers to present on the lived experience of MRKH and pioneering research. 

The day will be separated into two parts. The first half of the day will be more formal and held in the Ella Latham Auditorium. Anyone is welcome to attend this part of the day including health professionals, people with MRKH and their family and friends. 

The second half of the day will take more of a traditional support group format and will ONLY be for people with MRKH and their families. The Global MRKH Day 2019 team recognise, that at the heart of our community is trust and connection. This afternoon is dedicated to our community so you have an opportunity to either share your story, hear an experience that is relatable and engaging and hopefully, leave feeling connected and less alone.

19th World Congress of Paediatric and Adolescent Gynaecology

Global MRKH Day 2019 is being held prior to the 19th World Congress of Paediatric and Adolescent Gynaecology. By aligning the MRKH event with the Congress, we aim to bridge the gap between the MRKH community and the health professionals who work with them through building stronger connections. Please go to the WCPAG website for more information about this conference https://wcpag2019.org.

Connect. Learn. Grow.

Speakers

 
 

Program Outline

The Morning

Everyone is welcome to attend

The Afternoon
Only people with MRKH & their families can attend

 

Useful Information

About Melbourne

Haven't been to Melbourne before? You're going to love it! Here is some information about what to do while you're here.

General 

Are you considering traveling to Australia for this event? Here is some general information about what you need to know.

Visa

If you are traveling to Australia from overseas, you may be required to attain a Visa before entering the country.

Venue

This event will be held at the Royal Children’s Hospital, 50 Flemington Road, Parkville, Melbourne. Parkville is conveniently located very close to the Melbourne CBD. 

Feeling Nervous?

That's completely normal!!

This blog written by Dr Susan Carroll, a fierce MRKH advocate, might help.

 

Every year when I attend Boston Children’s Hospital’s annual MRKH conference, I’m met with the familiar, vivid memory of how I felt the first time I attended. And every year when I speak at the conference, I suppose I try to provide comfort to people who may be in the same place that I was in that first time. As I sat down to write my talk this year, I reflected on how the person I am really speaking to is myself at 17. So, this year I wrote her a letter to tell her some of the things I would want her to know.

The Organisers of
Global MRKH Day 2019

 

Donate

To ensure that everyone has an opportunity to attend this event, attendance is completely free of charge.  

 

However, if you would like to make a voluntary contribution to help with the running of the event, any donation is welcome. All donations will be used directly to support this event.

 

Our Partners

 
 
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