The Global MRKH Day 2019 is the first international event dedicated to Mayer-Rokitansky-Küster-Hauser (MRKH) Syndrome, designed by women with MRKH for women with MRKH. This event will be held on Friday 29 November 2019, The Royal Children’s Hospital, Melbourne, Australia.
Our key objective in planning the Global MRKH Day 2019 was to ask ourselves and our community What are the most important topics surrounding MRKH and what does this community want to hear about?
Responding to this we have created a program which addresses the fundamental aspects of MRKH, inviting speakers to present on the lived experience of MRKH and pioneering research.
The day will be separated into two parts. The first half of the day will be more formal and held in the Ella Latham Auditorium. Anyone is welcome to attend this part of the day including health professionals, people with MRKH and their family and friends.
The second half of the day will take more of a traditional support group format and will ONLY be for people with MRKH and their families. The Global MRKH Day 2019 team recognise, that at the heart of our community is trust and connection. This afternoon is dedicated to our community so you have an opportunity to either share your story, hear an experience that is relatable and engaging and hopefully, leave feeling connected and less alone.
19th World Congress of Paediatric and Adolescent Gynaecology
Global MRKH Day 2019 is being held prior to the 19th World Congress of Paediatric and Adolescent Gynaecology. By aligning the MRKH event with the Congress, we aim to bridge the gap between the MRKH community and the health professionals who work with them through building stronger connections. Please go to the WCPAG website for more information about this conference https://wcpag2019.org.
Connect. Learn. Grow.
That's completely normal!!
This blog written by Dr Susan Carroll, a fierce MRKH advocate, might help.
Every year when I attend Boston Children’s Hospital’s annual MRKH conference, I’m met with the familiar, vivid memory of how I felt the first time I attended. And every year when I speak at the conference, I suppose I try to provide comfort to people who may be in the same place that I was in that first time. As I sat down to write my talk this year, I reflected on how the person I am really speaking to is myself at 17. So, this year I wrote her a letter to tell her some of the things I would want her to know.